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Events

Community-Led Research Governance:
Envisioning the Future Through Dialogue

 

April 7-8, 2022 Workshop

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Description

This virtual, two-day workshop showcased the innovative and radical strategies of community-led research governance across Canada. The first day consisted of panel presentations by Indigenous and urban communities who shared their experiences with research, their community-based research ethics governance strategies, and their perspectives on how to re-envision current systems of research oversight for meaningful community involvement. This event was recorded and is available in English and French. The second day provided interested communities, researchers, and those working in the research ethics space with the opportunity to join each other in conversation. We had breakout group and big group discussions on the roles and responsibilities of stakeholders, challenges, opportunities and resources, and finally, recommendations to secure greater community involvement in research governance. Summaries of the discussions are available at in English here and en français ici.

Event Agenda

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Thank you to our sponsors!

Social Studies and Humanities Research Council of Canada (SSHRC)
Biomedical Ethics Unit (BMEU), McGill University
Social Studies of Medicine (SSoM), McGill University
Healthy Brains, Healthy Lives (HBHL)
Réseau Québecois sur le suicide, les troubles de l’humeur et les troubles associés (RQSHA)
Participatory Research at McGill (PRAM) – Community Information and Epidemiological Technologies (CIET)
Learning Exchange, University of British Columbia
Centre de recherche en éthique (CRÉ)
Overdose Prevention Society
Social Justice Research Institute, Brock University
Research Ethics Board, University of British Columbia

Organizers

Phoebe Friesen, Assistant Professor, Biomedical Ethics Unit, Social Studies of Medicine, McGill University
Alize Gunay, MSc Candidate, Family Medicine, Biomedical Ethics
Emily Doerksen, MSc Candidate, Human Genetics, Biomedical Ethics
Scott Neufeld, Lecturer, Community Psychology, Brock University

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